My Crohn’s Disease Journey: My Diagnosis


The 1st December to the 7th December is Crohn’s & Colitis Awareness Week. And to help raise awareness I want to share with you my Crohn’s Disease diagnosis.   

It’s been just over a year since I was diagnosed. In November 2017, I was diagnosed with severe Crohn’s Disease. After becoming very poorly and trips to the doctors and a trip to A&E, I was admitted into hospital. I felt so tired and weak and I was constantly having to rush to the toilet, my mum and I knew that something was definitely not right. I was immediately put onto daily medication, steroid drips as well as drips to help keep me hydrated.

For a few years, I had been having problems with my stomach, but it was just put down to being IBS and along with hospital advice I changed my diet thinking it would help. Over the following years I still struggled with my stomach, but I just carried on with a dairy, gluten and wheat free diet. It was last year when things started to get worse and worse. I had finished Uni and graduated and had just started a new job. I was having to rush to the toilet more and more and I started getting terrible pain in my stomach. I was starting to struggle at work and I was losing more and more weight. After trips to the doctors and even to the pharmacy to see what advice they could give me, I just wasn’t getting any better.

In October 2017, I was due to go on holiday to Mexico and after talking to the doctor and nurse, I had to carefully think if it was a good idea to go or not. I decided to still go, as I was really looking forward to going and it had all been paid for. Thankfully the holiday was only a week long and the seat I was in on the plane was right near the toilets. I took packets of Diarrhea tablets and pain relief tablets with me. Also, I only went on a couple of day trips in Mexico, (I made sure there would be a toilet on the coach) so most of the holiday was spent relaxing near the pool and I was close enough to the hotel room to pop back and forth for when I needed to rush to the toilet. I was also very careful with what I ate throughout the holiday.

My Crohn's Disease Diagnosis

After I got back from Mexico, my symptoms were still getting worse. I also had a gig coming up with the band I’m in just after coming back from my holiday. I really didn’t want to let my band mates down and thankfully we were only playing half a set. At least as I play the drums, I was able to sit down and play! I managed to get through the gig even though I felt awful inside.

By this point, because I had been going to the toilet so much, I had a very sore bottom! I was also getting terrible back pain and acid reflux. On Sunday 5th November my mum took me to A&E, but unfortunately I was sent home. It was the next day on Monday 6th November and after an appointment with my doctor, I was admitted to hospital. I was just so poorly and I desperately needed help.

The next day I really knew that something wasn’t right. I am so thankful that they were able to give me a bed in hospital. Because as I got up the next morning and had to rush to the toilet, I started to lose quite a lot of blood. I remember looking down and I burst into tears because there was so much blood and I just didn’t know what to think. After losing blood and mucus each time I was rushing to the toilet, it was arranged that the following day I would have a colonoscopy to see what was going on in my bowles. At this point I had completely lost my appetite and had little interest in food.

The next day, I was given an enema to clear my bowels and was taken down to the theatre room to see what was going on inside of me. As I was lying on the bed having my colonoscopy, I had no idea what they would find. I had a wonderful team of doctors and nurses looking after me. After I had heard those two words Crohn’s Disease, I broke down in tears. It was a huge mix of emotions I was feeling. But I think what I mostly felt was relief. Relief that I finally had answers after being poorly for so long. It wasn’t just all in my head. I also cried because I was scared. Although I knew of Crohn’s Disease, I didn’t really know much about it. As I looked on the screen whilst the camera was inside my bowels I just couldn’t believe what I was seeing. The type of Crohn’s Disease I have is Crohn’s Colitis, and as I looked up at the screen, my bowel was full of ulcers.

As soon as I got back to my room with my mum waiting there for me, I was put straight on to medication. I was given a steroid drip that I had 4 times a day, a drip to help me keep hydrated and tablets, along with pain relief tablets. The lovely nurses who looked after me during my stay in hospital, I am so grateful for. I am also very grateful to my mum for looking after me and coming to the hospital every day. As I had gotten very weak, my mum helped me to shower, helped me with my food and helped me to get dressed.

My Crohn's Disease Diagnosis

Due to the weight I had lost and also the little interest I had in food, I was given juice drinks to have each day along with some jellies. They have so many calories in each one and helped me while I wasn’t eating very much. I actually really liked taste of them! Especially the fruit punch flavoured jellies and the strawberry juice drinks. I saw a dietician whilst I was in hospital so I could get some advice on what to eat and what food to try and avoid. I also went on to the low fibre diet.

As it was the beginning of November while I was In hospital, I had a lovely view outside my room window of the fireworks at night. I also had a tv at the side of me and I had some books with me to read too, so I was able to keep myself amused during the day and night. I spent some time looking at the Crohn’s & Colitis UK website. After a visit from my IBD nurse, she recommended that I take a look at the website to find out more about Crohn’s Disease. I found that they had an online forum on Facebook to join. Finding out more about Crohn’s Disease definitely helped me a lot straight after my diagnosis.  

After spending 9 days in hospital I was able to go home. The results from the biopsies they took during my colonoscopy confirmed that it was Crohn’s Disease. I was given instructions for the medication I needed to take and given my discharge letter. I took the next few weeks off work, so I was able to take it easy and rest.

Crohn’s Disease is a type of Inflammatory Bowel Disease. The digestive system becomes inflamed, swollen and ulcerated. Crohn’s Disease can affect any part of the digestive system, from the mouth to the anus. The main symptoms can include pain in the abdomen, diarrhoea which can sometimes include blood and mucus, tiredness and weight loss. Crohn’s Disease is a life-long condition, as there is currently no cure.

Inflammatory Bowel Disease is an invisible illness and although someone may look well on the outside, it doesn’t mean that they are on the inside

I have set up a fundraiser page over on Facebook, to help raise £150 for Crohn’s & Colitis UK. Click here to check it out and donate. Thank you.  

Click here to find out more about the Crohn’s & Colitis UK Membership pack.

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My Crohn's Disease Diagnosis
Clementine Rose - Crohn's Disease Diagnosis

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Clementine

Hi, I’m Clementine, but everyone calls me Clem and I am the founder of Clem Loves. I am a writer and online content creator. I am also an Audio Production graduate. Email me at clemloves@gmail.com 💕